Who believes

Founded on July 5, 2001 in Guarulhos (São Paulo – Brazil), it is a non-governmental non-profit organization, that aims to promote the constitutional rights of people with this syndrome and who are in a situation of social vulnerability.

They have been leading important initiatives in Brazil and are recognized internationally through the efforts of their leadership team through Mrs. Maria José, President and Mrs. Regina Prospero, Vice President, among others.

The partnership will allow members of Instituto Vidas Raras to acquire the platform to store users’ medical data, facilitate the support of family members and other caregivers and help to organize information for medical appointments.